Assessment of the Current Health Care Landscape for People with Trisomy 13 or 18 and their Families

Laura Hart MD, Nationwide Children’s Hospital 

February – December 2025 

The research will systematically review what is known about the clinical context of trisomy 13 and 18—including associated conditions, treatments, clinician attitudes, and family experiences. The project will also gather data from Children’s hospitals around the country to determine what clinical services are currently offered and where. This work will help to identify exemplary care models and gaps for further research.

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