Families impacted by trisomy 13 or 18 need information, support, and state-of-the-art care to make the best choices, despite difficult circumstances. We strive to improve the healthcare environment by supporting better collaboration among clinicians and families.
We pursue innovative projects that expand our understanding of the family experience, advance clinical knowledge, and develop educational resources for families and clinicians.
Clinical guidelines, noteworthy publications, and opportunities to network with a multidisciplinary group of researchers, clinicians, and advocates devoted to improving care for families.
Information on grant opportunities, findings from research we have supported, and opportunities to network with a multidisciplinary group of researchers, clinicians, and advocates.
Family-focused resources highlighting the latest treatment options in easy-to-understand formats.
We curate and share the most up-to-date guidance and research on trisomies 13 and 18 so clinicians can provide the best patient care and advice. We host the Collaborative Roundtable so clinicians and researchers can share and learn together.
The Trisomy 13 and 18 Collaborative today announced the hiring of its first Executive Director, Virginia (Ginger) Spitzer, who brings a wealth of experience leading nonprofits in the healthcare space.
This webinar includes recommendations for the care of children with Trisomy 13 or Trisomy 18 and a Congenital Heart Defect
Recommendation for the care of children with trisomy 13 or trisomy 18 and a congenital heart defect
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