OUR WORK

Our Areas of Focus

The Collaborative has three complementary approaches to improve care for families impacted by trisomy 13 or 18.

We fund innovative projects that build the clinical understanding of trisomies 13 and 18, from observational studies to developing and implementing clinical and educational interventions.

Community engagement

We convene clinicians, researchers, and family support professionals to share knowledge, solve problems, and generate ideas to improve care for families impacted by trisomy 13 or 18.

Partnerships

We engage with professional societies, health systems, academic institutions and family support organizations to maximize their impact around trisomy 13 and 18 care. 

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