Investigators: Nick Holladay, Executive Director, Support Organization for Trisomy (SOFT)
Date: January 2026 – December 2026
Description: The Support Organization for Trisomy (SOFT) aims to develop and pilot a Parent-to-Parent Support Program (P2P), building curriculum, training, and infrastructure for parent mentors to support families receiving a T13/18 diagnosis both prenatally and postnatally, with capacity to scale in future years. The aims are as follows: (1) identify the key features and framework of a T13/18 Parent-to-Parent Support Program, (2) develop and pilot a T13/18 Parent-to-Parent Support Program with a cohort of 10 parent mentors, and (3) revise and customize the T13/18 Parent-to-Parent Support Program to prepare for future implementation and dissemination.
